An intelligent data ecosystem for rare cancers

Active
9/2022 ⟼ 8/2026
IDEA4RC aims at developing an IT infrastructure to facilitate the sharing and re-use of health data among clinical centers to promote research on rare cancers and improve patients’ access to high quality care. Our challenge is building a new tool to overcome interoperability issues and make it easier to comply with privacy regulations.
IDEA4RC is being carried out by 25 partners from 12 European countries and coordinated by the Istituto Nazionale dei Tumori in Milan (Italy). The project started in September 2022 and is funded by Horizon Europe.
Our role in the project is to deploy an IDEA4RC capsule at the site of our MMCI partner institution. We are also developing tools for populating the capsule with data describing local head&neck and sarcoma patient cohorts. The data is extracted from both structured and unstructured records in the MMCI hospital information system and integrated in an OMOP knowledge base before being exposed for federated analytics in IDEA4RC.